Intervention Library
See below for a list of manuscripts reviewing interventions for adherence outcomes grouped by illness population:
Cystic Fibrosis:
Diabetes:
Epilepsy:
Gastrointestinal & Inflammatory Bowel Disease:
Hematology-Oncology & Bone Marrow Transplant:
Juvenile Rheumatoid Arthritis (now known as Juvenile Idiopathic Arthritis):
Obesity:
Solid Organ Transplant:
A special thank you to all who have contributed to our resource library including: Alex Arnett, Ariella Carlin, Kelli Harford, Rebecca Hashim, Ph.D., Brooke Hater, Kristin Hollett, Elizabeth Kuhl, Ph.D., Kristin Loiselle, Ph.D., Krista Mann, Avani Modi, Ph.D., Shannon Ollier, Chelsea Oswald, Michael Rapoff, Ph.D., Bradley Schwimmer, and Lauryn Urso.
Cystic Fibrosis:
- Bernard, R.S., Cohen, L.L., & Moffett, K. (2009). A token economy for exercise adherence in pediatric cystic fibrosis: a single-subject analysis. Journal of pediatric psychology, 34 4, 354-65.
- Downs, J.A., Roberts, C.M., Blackmore, A.M., Le Souëf, P.N. & Jenkins, S.C. (2006). Benefits of an education programme on the self-management of aerosol and airway clearance treatments for children with cystic fibrosis. Chronic Respiratory Disease, 3, 19-27
- Hourigan, S. E., Helms, S. W., Christon, L. M., & Southam-Gerow, M. A. (2013). Improving nutrition in toddlers with cystic fibrosis: Feasibility of a behavioral parent-training intervention. Clinical Practice in Pediatric Psychology, 1(3), 235–249.
- Lechtzin, N., Mayer-Hamblett, N., West, N. E., Allgood, S., Wilhelm, E., Khan, U., ... & Gibson, R. L. (2017). Home monitoring of patients with cystic fibrosis to identify and treat acute pulmonary exacerbations. eICE study results. American journal of respiratory and critical care medicine, 196(9), 1144-1151.
- Marciel, K. K., Saiman, L., Quittell, L. M., Dawkins, K., & Quittner, A. L. (2010). Cell phone intervention to improve adherence: cystic fibrosis care team, patient, and parent perspectives. Pediatric pulmonology, 45(2), 157-64.
- Moola, F. J., Garcia, E., Huynh, E., Henry, L., Penfound, S., Consunji-Araneta, R., & Faulkner, G. E. (2017). Physical Activity Counseling for Children With Cystic Fibrosis. Respiratory Care, 62(11), 1466-1473.
- Morton, R. W., Elphick, H. E., Edwards, E., Daw, W. J., & West, N. S. (2017). Investigating the feasibility of text message reminders to improve adherence to nebulized medication in children and adolescents with cystic fibrosis. Patient Preference and Adherence, 11, 861.
- Piazza-Waggoner, C., Ferguson, K.S., Daines, C., Acton, J.D. & Powers, S.W. (2006). Case study: Providing evidence-based behavioral and nutrition treatment to a toddler with cystic fibrosis and multiple food allergies via Telehealth. Pediatric Pulmonology, 41, 1001-1004
- Powers, S.W., Jones, J.S., Ferguson, K.S., Piazza-Waggoner, C., Daines, C. & Acton, J.D. (2005). Randomized clinical trial of behavioral and nutrition treatment to improve energy intake and growth in toddlers and preschoolers with cystic fibrosis. Pediatrics, 116(6),1442-1450
- Shakkottai, A., Kaciroti, N., Kasmikha, L., & Nasr, S. Z. (2018). Impact of home spirometry on medication adherence among adolescents with cystic fibrosis. Pediatric Pulmonology, 53(4), 431-436.
- Stark, L.J., Miller, S.T., Plienes, A.J., Drabman, R.S. (1987). Behavioral contracting to increase chest physiotherapy. Behavioral Modification. 11, 75-86.
- Stark, L.J., Quittner, A.L., Powers, S.W., Opipari-Arrigan, L., Bean, J.A., Duggan, C. & Stallings, V.A. (2009). Randomized clinical trial of behavioral intervention and nutrition education to improve caloric intake and weight in children with cystic fibrosis. Archives of Pediatric Adolescent Medicine, 163(10), 915-921
Diabetes:
- Anderson, B. J., Brackett, J., Ho, J., & Laffel, L. M. B. (1999). An office-based intervention to maintain parent-adolescent teamwork in diabetes management: Impact on parent involvement, family conflict, and subsequent glycemic control. Diabetes Care, 22
- Ellis, D.A., Frey, M.A., Naar-King, S., Templin, T., Cunningham, P., Cakan, N. (July 2005). Use of Multisystemic Therapy to Improve Regimen Adherence among Adolescents with Type 1 Diabetes in Chronic Poor Metabolic Control. Diabetes Care. 28(7), 1604-1610.
- Ellis, D. A., Carcone, A. I., Naar-King, S., Rajkumar, D., Palmisano, G., & Moltz, K. (2019). Adaptation of an evidence-based diabetes management intervention for delivery in community settings: Findings from a pilot randomized effectiveness trial. Journal of Pediatric Psychology, 44, 110-125.
- Feldman, M. A., Anderson, L. M., Shapiro, J. B., Jedraszko, A. M., Evans, M., Weil, L. E. G., Weissberg-Benchell, J. (2018). Family-based interventions targeting improvements in health and family outcomes of children and adolescents with type 1 diabetes: A systematic review. Current Diabetes Reports, 18(3), 1-12. doi:10.1007/s11892-018-0981-9
- Hilliard, M. E., Eshtehardi, S. S., Minard, C. G., Wheat, S., Gunn, S., Sanders, C., Anderson, B. J. (2019). Featured article: Strengths-based, clinic-integrated nonrandomized pilot intervention to promote type 1 diabetes adherence and well-being. Journal of Pediatric Psychology, 44, 5-15.
- Holmes, C. S., Chen, R., Mackey, E., Grey, M., & Streisand, R. (2014). Randomized clinical trial of clinic-integrated, low-intensity treatment to prevent deterioration of disease care in adolescents with type 1 diabetes. Diabetes Care, 37, 1535-1543.
- Jaser, S. S., PhD, Patel, N., MPH, Linsky, R., BA, & Whittemore, Robin, PhD, APRN, FAAN. (2014). Development of a positive psychology intervention to improve adherence in adolescents with type 1 diabetes. Journal of Pediatric Health Care, 28(6), 478-485.
- Mulvaney, S.A., Rothman, R.L., Wallston, K.A., Lybarger, C., Dietrich, M.S. (March 2010). An Internet-Based Program to Improve Self-Management in Adolescents With Type 1 Diabetes. Diabetes Care, 33(3), 602-604.
- Raiff, B.R. & Dallery, J. (2010). Internet-based contingency management to improve adherence with blood glucose testing recommendations for teens with type 1 diabetes. Journal of Applied Behavioral Analysis, 43(3), 487-491.
- Salamon, K.S., Hains, A.A., Fleischman, K.M., Davies, W.H. & Kichler, J. (2010). Improving adherence in social situations for adolescents with type 1 diabetes mellitus (T1DM): A pilot study. Primary Care Diabetes, 4(1), 47-55.
- Schwartz, D.D., Cline, V.D., Axelrad, M.E., Anderson, B.J. (February 2011). Feasibility, Acceptability, and Predictive Validity of a Psychosocial Screening Program for Children and Youth Newly Diagnosed With Type 1 Diabetes. Diabetes Care. 34(2), 326-331.
- Stanger, C., Lansing, A. H., Scherer, E., Budney, A., Christiano, A. S., & Casella, S. J. (2018). A web-delivered multicomponent intervention for adolescents with poorly controlled type 1 diabetes: A pilot randomized controlled trial. Annals of Behavioral Medicine : A Publication of the Society of Behavioral Medicine, 52, 1010-1022.
- Whittemore, R., Liberti, L. S., Jeon, S., Chao, A., Minges, K. E., Murphy, K., & Grey, M. (2016). Efficacy and implementation of an internet psychoeducational program for teens with type 1 diabetes: Internet psychoeducation for teens with T1D. Pediatric Diabetes, 17, 567-575.
- Wysocki, T., Harris, M.A., Buckloh, L.M., Mertlich, D., Lochrie, A.S., Mauras, N. and White, N.H. (March 2007). Randomized Trial of Behavioral Family Systems Therapy for Diabetes. Diabetes Care. 30(3), 555-560.
Epilepsy:
- Jantzen, S., Muller-Godeffroy, E., Hallfahrt-Krisl, T., Aksu, F., Pust, B., Kohl, B., Redlich, A., Sperner, J., & Thyen, U. (2009). FLIP&FLAP: A training programme for children and adolescents with epilepsy and their parents. Seizure, 18(7), 478-486. doi: 10.1016/j.seizure.2009.04.007
- Modi, A. C., Guilfoyle, S. M., & Rausch, J. (2013). Preliminary Feasibility, Acceptability, and Efficacy of an Innovative Adherence Intervention for Children With Newly Diagnosed Epilepsy. Journal of Pediatric Psychology,38(6), 605–616. doi:10.1093/jpepsy/jst021
- Shope, J. (1980). Intervention to improve compliance with pediatric anticonvulsant therapy. Patient Counselling and Health Education, 2(3), 135-141. doi:10.1016/S0738-3991(80)80056-5
- Shope, J. (1988). Compliance in children and adults: Review of studies. Compliance in Epilepsy, 1, 23-47.
- Wagner, J. L., Smith, G., Ferguson, P., van Bakergem, K., & Hrisko, S. (2010). Pilot study of an integrated cognitive-behavioral and self-management intervention for youth with epilepsy and caregivers: Coping Openly and Personally with Epilepsy (COPE). Epilepsy & Behavior, 18, 280-285. doi: 10.1016/j.yebeh.2010.04.019
- Wagner, J. L., Smith, G., Ferguson, P., van Bakergem, K., & Hrisko, S. (2011). Feasibility of a pediatric cognitive-behavioral self-management intervention: Coping Openly and Personally with Epilepsy (COPE). Seizure, 20(6), 462-467.
Gastrointestinal & Inflammatory Bowel Disease:
- Grootenhuis, M.A., Maurice-Stam, H., Derkx, B.H., Last, B.F. (2009). Evaluation of a psychoeducational intervention for adolescents with inflammatory bowel disease. European Journal of Gastroenterology and Hepatology, 21(4), 430-435.
- Hommel, K.A., Herzer, M., Ingerski, L.M, Hente, E. & Denson, L.A. (2011). Individually-tailored treatment of medication nonadherence: A pilot study. Journal of Pediatric Gastroenterology and Nutrition, 53(4), 435-439.
- Hommel, K.A., Hente, E.A., Odell, S., Herzer, M., Ingerski, L.M., Guilfoyle, S.M. & Denson, L.A. (2012). Evaluation of a group-based behavioral intervention to promote adherence in adolescents with Inflammatory Bowel Disease. European Journal of Gastroentereology and Hepatology, 24(1), 64-69.
- Stark, L.J., Hommel, K.A., Mackner, L.M., Janicke, D.M., Davis, A.M., Pfefferkorn, M., Crandall, W. & Heubi, J. (2005). Randomized trial comparing two methods of increasing dietary calcium intake in children with inflammatory bowel disease. Journal of Pediatric Gastroenterology and Nutrition, 40(4), 501-507.
- Szigethy, E., Whitton, S.W., Levy-Warren, A., DeMason, D.R., Weisz, J. & Beardslee, W.R. (2004). Cognitive-Behavioral Therapy for Depression in Adolescents with Inflammatory Bowel Disease: A pilot study. Journal of the American Academy of Child & Adolescent Psychiatry, 43(12), 1469-1477.
Hematology-Oncology & Bone Marrow Transplant:
- Cox, C.L., McLaughlin, R.A., Rai, S.N., Steen, B.D., & Hudson, M.M. (2005). Adolescent survivors: a secondary analysis of a clinical trial targeting behavior change. Pediatric Blood & Cancer, 45(2), 144-154.
- Gilliam, M. B., Ross, K., Futch, L., Walsh, A., Davis, D., Whelan K., & Madan-Swain, A. (2011). A pilot study evaluation of a web-based token economy to increase adherence with a community based exercise intervention in children and adolescent cancer survivors. Rehabilitation Oncology, 29(2). 16-22.
- Hilliard, M.E., Ramey, C., Rohan, J.M., Drotar, D., & Cortina, S. (2011). Electronic monitoring feedback to promote adherence in an adolescent with Fanconi Anemia. Health Psychology, 30(5), 503-509.
- Hudson, M.M., Tyc, V.L., Srivastava, D.K., Gattuson, J., Quargnenti, A., Crom, D.B., & Hinds, P. (2002). Multi-component behavioral intervention to promote health protective behaviors in childhood cancer survivors: the Protect study. Medical and Pediatric Oncology, 39, 2-11.
- Kato, P.M., Cole, S.W., Bradlyn, A.S., & Pollock, B.H. (2008). A videogame improves behavioral outcomes in adolescents and young adults with cancer: a randomized controlled trial. Pediatrics, 122(2), e305-317.
- Le, A., Mitchell, H.R., Zheng, D. J., Rotatori, J., Fahey, J. T., Ness, K. K., & Kadan-Lottick, N. S. (2016). A home-based physical activity intervention using activity trackers in survivors of childhood cancer: A pilot study. Pediatric Blood & Cancer, 64, 387-394.
- Mays, D., Black, J.D., Mosher, R.B., Heinly, A., Shad, A.T., & Tercyak, K.P. (2011). Efficacy of the Survivor Health and Resilience Education (SHARE) program to improve bone health behaviors among adolescent survivors of childhood cancer. Annals of Behavioral Medicine, 42, 91-98.
- Mays, D., Black, J.D., Mosher, R.B., Shad, A.T., Tercyak, K.P. (2011). Improving short-term sun safety practices among adolescent survivors of childhood cancer: a randomized controlled efficacy trial. Journal of Cancer Survivorship, 5(3), 247-254.
- Salaverria, C., Rossell, N., Hernandez, A., Fuentes Alabi, S., Vasquez, R., Bonilla, M., Lam, C. G., Ribeiro, R. C. (2015). Interventions targeting absences increase adherence and reduce abandonment of childhood cancer treatment in El Salvador. Pediatric Blood & Cancer, 62, 1609-1615.
- Tercyak, K. P., Donze, J. R., Prahlad, S., Mosher, R. B., & Shad, A. T. (2006). Multiple behavioral risk factors among adolescent survivors of childhood cancer in the Survivor Health and Resilience Education (SHARE) program. Pediatric Blood & Cancer, 47, 825-830.
Juvenile Rheumatoid Arthritis (now known as Juvenile Idiopathic Arthritis):
- Rapoff, M.A., Lindsley, C.B. & Christophersen, E.R. (1984). Improving compliance with medical regimens: A case study with juvenile rheumatoid arthritis. Archives of Physical Medicine and Rehabilitation, 65, 267‑169.
- Rapoff, M.A., Purviance, M.R. & Lindsley, C.B. (1988). Improving medication compliance for juvenile rheumatoid arthritis and its effect on clinical outcome: A single‑subject analysis. Arthritis Care and Research, 1, 12‑16.
- Rapoff, M.A., Purviance, M.R. & Lindsley, C.B. (1988). Educational and behavioral strategies for improving medication compliance in juvenile rheumatoid arthritis. Archives of Physical Medicine and Rehabilitation, 69, 439‑441.
- Rapoff, M.A., Belmont, J., Lindsley, C.B., Olson, N.Y., & Padur, J. (2002). Prevention of nonadherence to non-steroidal anti-inflammatory medications for newly diagnosed patients with juvenile rheumatoid arthritis. Health Psychology, 21, 620-623.
- Stark, L.J., Janicke, D.M., McGrath, A.M., Mackner, L.M., Hommel, K.A., & Lovell, D. (2005). Prevention of osteoporosis: A randomized clinical trial to increase calcium intake in children with juvenile rheumatoid arthritis. Journal of Pediatric Psychology, 30, 377-386.
- Stinson, J.N., McGrath, P.J., Hodnett, E.D., Feldman, B.M., Duffy, C.M., Huber, A.M., … White, M.E. (2010). An internet-based self-management program with telephone support for adolescents with arthritis: A pilot randomized controlled trial. Journal of Rheumatology, 37, 1944-1952.
Obesity:
- Golan, M., Weizman, A., Apter, A., & Fainaru, M. (1998). Parents as the exclusive agents of change in the treatment of childhood obesity. American Journal of Clinical Nutrition, 67,1130-1135.
- Wrotniak, B., Epstein, L., Paluch, R., & Roemmich, J. (2005). The relationship between parent and child self-reported adherence and weight loss. Obesity Research, 13, 1089-1096.
Solid Organ Transplant:
- Annunziato, R. A., Emre, S., Schneider, B. L., Dugan, C. A., Aytaman, Y., McKay, M. M., & Shemesh, E. (2008). Transitioning health care responsibility from caregivers to patient: A pilot study aiming to facilitate medication adherence during this process.
- Beck, D. E., Fennell, R. S.,Yost, R. L., Robinson, J. D., Geary, D., & Richards, M. D. (1980). Evaluation of an educational program on compliance with medication regimens in pediatric patients with renal transplants. Medical Care, 96, 1094-1097.
- Fennell, R. S., Foulkes, L. M., & Boggs, S. R. (1994). Family-based program to promote medication compliance in renal transplant children. Transplantation Proceedings, 26, 102-103.
- Miloh, T., Annunziato, R., Arnon, R., Warshaw, J., Parkar, S., Suchy, F. J., . . . Kerkar, N. (2009). Improved adherence and outcomes for pediatric liver transplant recipients by using text messaging. Pediatrics, 124(5), e844-e850.
- Shemesh, E., Annunziato, R.A., Shneider, B.L., Dugan, C.A., Warshaw, J., Kerkar, N., & Emre, S. (2008). Improving adherence to medications in pediatric liver transplant recipients. Pediatric Transplantation, 12, 316-323.
A special thank you to all who have contributed to our resource library including: Alex Arnett, Ariella Carlin, Kelli Harford, Rebecca Hashim, Ph.D., Brooke Hater, Kristin Hollett, Elizabeth Kuhl, Ph.D., Kristin Loiselle, Ph.D., Krista Mann, Avani Modi, Ph.D., Shannon Ollier, Chelsea Oswald, Michael Rapoff, Ph.D., Bradley Schwimmer, and Lauryn Urso.